Bill is originally from Rochester, New York. He’s been a North Carolina resident for the last six years.
Bill suffers from chronic pain. He also suffers from what is called an Acoustic Neuroma. An Acoustic Neuroma is a benign or non-cancerous growth that arises from the 8th or vestibulo-cochlear nerve. The vestibular nerve is responsible for balance while the cochlear is responsible for hearing. The seventh nerve which is responsible for facial movement is adjacent to the eighth nerve as they pass through the internal auditory canal.
The cause of Acoustic Neuroma is unclear. The gene that causes this condition curiously waits until the afflicted reaches the average age of 48. Acoustic Neuroma affects 2.5% of the population.
Symptoms include hearing reduction to complete hearing loss, imbalance or unsteadiness, intermittent or constant facial numbness, tingling, tics, or spasms. As the tumor grows larger or presses on the brainstem, the patient will experience headaches, facial weakness, vertigo, and unsteady gait due to raised intracranial pressure.
Bill suffers from an Acoustic Neuroma
For Bill, one of the most noticeable symptoms is Tinnitus; a reduction in hearing, accompanied by ringing in the ears, or ear noise. When the “ringing headaches” start, he has to lay down. The room has to be dark and without noise.
Also with Acoustic Neuroma, there is the constant fear that it’s growing. Presently for Bill, it has stabilized.
Bill has taken a great deal of prescriptions and over-the-counter medicines. He has taken Demerol, Codeine tablets, and a number of non narcotic meds. The physicians seemed to prescribe everything under the sun, including Prozac. Anti-depressants are often prescribed for other things than depression.
Prozac, or Fluoxetine, the generic, in an antidepressant. It is approved for the treatment of major depression (including pediatric depression, obsessive-compulsive disorder, bulimia nervosa, anorexia nervosa, panic disorder and premenstrual dissphoric disorder. More than 22.2 million prescriptions were filled in the United States in 2007.
Side effects include anxiety, decreased sexual desire or ability, diarrhea, dizziness, drowsiness, dry mouth, increased sweating, loss of appetite, nausea, nervousness, stomach upset, trouble sleeping, weakness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bizarre behaviour, black or bloody stools, chest pain, confusion, exaggerated reflexes, fast or irregular heartbeat, fever, chills, sore throat, hallucinations, increased urination, joint or wrist aches or pain, loss of coordination, new or worsening agitation, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still, persistent or severe ringing in the ears, persistent, painful erection, red, swollen, blistered, or peeling skin, seizures, severe or persistent anxiety or trouble sleeping, significant weight low, stomach pain, suicidal thoughts or attempts, tremor, unusual bruising or bleeding, unusual hoarseness, unusual or severe mental or mood changes, unusual swelling, vision changes, worsening of depression.
Bill is also a lung cancer survivor.
There’s not much pharmaceutical medicine can do for Bill. “They just don’t seem to help,” He’s afraid of narcotics. He’s been through that. He knows there’s no future for him with opiates. He didn’t like how pharmaceuticals could keep him from feeling everyday life.
With Cannabis he is able to relax and listen to music, and the headache will go away. The cannabis helps the anxiety go away too. Cannabis provides relief for him.
Bill is a cancer survivor. 16 years ago, he was diagnosed with lung cancer. He was fortunate. He didn’t have to undergo chemotherapy. But working his warehouse job proved too strenuous for him, what with the Acoustic Neuroma and now, missing part of a lung. He was forced to go on Disability.
He tries to live his life as good as he can. He volunteers at a local hospital, in Raleigh, the Rex Cancer Center. It’s very rewarding work for him. Patients come in and he gives them access to printed resource material. There’s wigs for women who are experiencing hair loss from chemo. In general, Bill does what he can to lend a sympathetic and understanding ear to anyone who comes in with a need.
He’s around a lot of people every day that could benefit from cannabis. But he’s reluctant to talk to anyone about it in fear of violating office policy. He knows that at least he can provide a measure of help to the hurting, but if he was discharged, he would do no one any good. But it’s still frustrating for him to watch people suffer, knowing that there was something that could relieve their pain and possibly even stop the progression of their cancer. He sees so many people who are wasting away from the cancer, the chemo, and the radiation.
Bill believes that, in spite of the cancer and all, he’s lived a fortunate life. He feels good about giving back to the community, particularly here in North Carolina, his new home. It’s very rewarding for him to help people.
Bill takes walks for exercise. A short time ago, he began suffering chest pains. He went to see his doctor and, the next thing he knew, he was in the hospital, looking at a stint procedure. The cardiologist told him very matter of factly how the procedure would go and he didn’t leave room for discussion. Trusting that the specialist knew far more than he, he agreed to undergo the surgery.
Now he must take Plavix, Lipitor, and a diuretic.
Diuretics are often given to offset water retention, another side-effect of the prescription drugs.
Plavix is used to reduce the risk of stroke or heart attack in patients who have already had a heart attack or stroke, or have other circulatory problems due to narrowing and hardening of the arteries. Possible side-effects are easy bruising, minor bleeding, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bleeding in the eye, change in vision, change in the amount of urine, chest pain, dark or bloody urine, black, tarry stools, unusual or severe bleeding (excessive bleeding from cuts, increased menstrual bleeding, unexplained vaginal bleeding, unusual bleeding from the gums when brushing), loss of appetite, pale skin, seizures, severe or persistent headache, sore throat, fever, speech problems, weakness, unexplained weight loss, yellowing of skin or eyes.
Lipitor is used to lower high cholesterol and triglycerides in certain patients. It is used in certain patients to reduce the risk of heart attack, stroke, chest pain caused by angina, or blood vessel blockage. It is also used in certain patients to reduce the risk of hospitalization for congestive heart failure, or the need for medical procedures to open blocked heart blood vessels. Possible side-effects are constipation, gas, headache, stomach pain or upset, weakness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bone, joint, or tendon pain, change in the amount of urine produced, chest pain, dark urine, fever, chills, persistent sore throat, flu-like symptoms, joint pain, muscle pain, tenderness, weakness (with or without fatigue), painful or frequent urination, pale stools, red, swollen, blistered, or peeling skin, severe stomach pain, swelling of the hands, ankles, or feet, yellowing of the eyes or skin.
Every day when Bill wakes up, he feels like he’s been steamrolled. The cholesterol medicine just wipes him out. He doesn’t have much energy. Certainly less energy than he had prior to the stint surgery. He’s laying down more than he used to.
He was told by his cardiologist at his follow-up appointment, “you have got to do this.” “You have got to do the Plavix. You have got to do the Lipitor.” ”You’ll have a heart attack if you don’t take the Plavix. “The stint will close up. “ “The medicine won’t be activated that’s on the stint”.
Bill felt like he was sold a bill of goods. He felt that he had been lock into this. He knew that he wouldn’t be the same. “My body has been invaded by surgical steel.” He just didn’t know that he’d be locked into taking a harmful, debilitating drug for the rest of his life.
He smokes cannabis on an as needed basis. He uses it when he “just feels bad.” It helps him feel better. It takes away the tired feeling that he gets from taking all the “lifestyle” medications. He has found that the cannabis helps the prescription meds work better by minimizing the side effects.
He suffers no side-effects from dosing with cannabis apart from having an appetite again, something the pharmaceuticals had taken away.
Bill’s conversation turns quickly to the people he knows are undergoing chemotherapy. “It would definitely benefit people who are undergoing chemo or radiation.”
With Cannabis he gets the same desired affect every time. With prescriptions he built up a tolerance.
Bill believes people should have the choice, especially if they are chronically or terminally ill. He believes it is everyone’s right to determine how they should manage their pain.
He knows it’s tough on everyone when someone becomes chronically ill. It affects their family; their friends, He just doesn’t understand why the powers-that-be, the lawmakers can’t see this. “If there’s a substance that allows people to have relief, make it available to them. People who need cannabis have to go to the street. The streets are dangerous.”
When asked if he would like to say a few words to his state legislators, he said, “Take a serious look at cannabis as a medical alternative. Every week I’m moved by patients who could benefit from Medical Cannabis, people who are unable to eat, that are having chronic pain, they’re prescribed a lot of different drugs. The spirit that these people show is visibly affected by the heavy dose of radiation and chemotherapy. This is one thing that can help them. Medical Cannabis. Please take a serious look at this. Offer it to people as an alternative.”
“My God, “ Bill adds. “When people are sick, they want something that will help them. They don’t want to be bombarded by more prescription drugs. It becomes a quality of life issue. …people are dying as we speak. “
Teri Garr and MS: Does she use Cannabis?
I grew old with Teri, though I always thought she faired better with age. I enjoyed her many movies and natural beauty. Very funny, too.
Who would have thought this morning, while watching a very young Teri Garr on an old rerun of Star Trek and commenting on how attractive she was then, that later that same day I would be Blogging on her.
Multiple Sclerosis is a chronic, potentially debilitating disease that affects the central nervous system, which is made up of the brain and spinal cord. Doctors and researchers think the illness is probably an autoimmune disease, which means that your immune system attacks part of your body as if it’s a foreign substance.
I was curious if Teri’s maintenance, if not remission with this illness may be due to her using Cannabis. A little research showed that she is a paid spokesperson for a pharmaceutical company. I can see how that might inhibit any admission from her to using Cannabis.
Further research revealed that Ms. Garr has served as Chair for the National Multiple Sclerosis Society since 2002 and as Chair for the Women Against MS.
Garr said back in 2005 that she won’t advocate medical marijuana for MS-related pain because she doesn’t want her 11-year-old daughter trying the drug. But she agrees that as a relaxer, pot is “probably better than booze.”. Obviously, she is quite familiar with its Anti-anxiety properties.
But a lot of research has come out since then. The National Multiple Sclerosis Society has, in fact recently come out with their own endorsement of Cannabis for the treatment of MS.
The odds are looking very good that Garr doses with Cannabis.
Joe uses Cannabis to treat his MS
“There are several drugs out right now that can’t stop multiple sclerosis, but they can slow it way down,” Says Garr who has also suffered side effects. “They also made me puff up like a balloon. So I looked horrible. I hated that.”
The first time I read this, I jokingly said that if the bloating was due to weight gain from overeating, Cannabis may be the culprit, but that’s obviously not the case here. Terri’s symptoms appear to be more pharmaceutical by the way it sounds.. Definitely not something to joke about.
I truly do hope that Teri uses Cannabis if for no other reason than to offset the symptoms from her pharmaceuticals. According to the National Multiple Sclerosis Society ,these are approved drugs for treating MS and its symptoms:
Avonex: An Interferon beta-1a drug, Avonex’s primary benefit is as an anti-inflammatory. Side-effects include flu-like symptoms, injection–site reactions, depression, seizures and liver problems. A one month supply of Avonex can run anywhere from $1600 to $2000.
Betaseron is a Interferon beta-1b drug. It’s an E. coli derivative. Its primary benefit is also as an anti-inflammatory. Side effects include depressed mood, anxiety, trouble sleeping, restlessness, thoughts of suicide or hurting yourself, bruising, swelling, oozing, injection-site reactions, weakness, headache, muscle pain, weakness, stomach pain, swelling in hands or feet, skin rash, and irregular menstrual periods…other side-effects may occur.
Copaxone: (Glatiramer) How Copaxone works is not fully understood, but it appears to reduce relapses. Side-effects include can include anxiety, back pain, chest tightness, diarrhea, ear pain, fever, flu symptoms, infection, flushing, joint pain, loss of appetite, mild redness, pain, itching, nausea, neck pain, nervousness, painful menstrual flow, rapid eye movement, skin nodules, stomach pain, sweating, swelling of the legs and feet, vomiting, weakness, weight gain, abnormal thinking, dizziness, fast heartbeat, memory loss, tightness in the throat, tremor.
Novantrone: (Mitoxantrone) Novantrone is used to reduce relapses. Among it’s side-effects are: rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, chest pain dark pink or bloody urine, fast or irregular heartbeat, fever, chills, sore throat, persistent cough, increased, decreased, or painful urination, mental or mood changes, anxiety, depression, mouth sores, inflammation, severe pain, persistent tiredness, weakness, shortness of breath, sinus infection, sudden, unexplained weight gain, swelling of the hands, legs, or feet, unusual bruising or bleeding, vision changes.
Rebif: Rebif is used to reduce relapses, as it seems to be the cover point for most MS drugs, as well as the fact that researcher have no idea how this one works, either. Side effects include: drowsiness, flu-like symptoms, headache, tiredness, fever, chills, back pain, muscle aches, weakness, pain, stomach pain, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, change in vision, chest pain, dark urine, depression, feeling cold or hot all the time, infection at the injection sight, seizures, suicidal thoughts or behaviors, unexplained change in weight, yellowing of the eyes, or skin.
Tysabri: Tysabri is a monoclonal antibody. It’s also a very dangerous drug. It’s usually given to patients who cannot use other MS treatments or for patients with whom other treatments don’t work. They don’t know how it works, either. Side effects include diarrhea, headache, joint pain, muscle cramps, pain in the arms or legs, tiredness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the muth, face, lips, or tongue, changes in balance, eyesight, strength, or thinking, chest pain, or discomfort, chills, dark urine, depression, dizziness, fast heartbeat, feeling cold, fever, flushing, muscle pain, nausea, painful menstrual periods, painful urination, right-sided back, stomach, or side pain, severe or persistent headache or tiredness, shortness of breath, sore throat, suicidal thoughts or attempts, swelling of the hands, ankles, or legs, tremor, vaginal discharge, itching, or odor, vomiting, yellowing of the skin eyes. By the way, this is not a complete list either.
Chances are, Garr uses Cannabis for medicine. Why do I believe that? According to recent statistics from the National Multiple Sclerosis Society one out of every two MS patients already use Cannabis. That’s not only good odds, it’s good reasoning on behalf of the average Multiple Sclerosis patient. After all, using Cannabis means the average MS patient won’t have to use as much harmful pharmaceuticals, or maybe not use any at all.
Dr. Denis Petro is the consulting Neurologist for the Multiple Sclerosis Patients Union. In one of our Patients Out of Time videos, Dr. Petro remarks on the fact that there are currently no less than 7 clinical trials that prove that Cannabis does have anti-spasticity benefits for the MS patient. Petro, whose research regarding Cannabis spans over 25 years, is frustrated by our government and media’s refusal to recognize what other countries the world over already accept for years, Cannabis is real medicine.
“Drug companies only want to do research on something that will bring money down the road.” Concluded Petro.
Dr. Petro speaks to the press regarding Cannabis treatment for MS
All things considered, if all Teri is experiencing is bloating and she’s not experiencing any of the other more lethal side effects of prescription drugs, I’d have to say she’s either using Cannabis, or miraculously fortunate.
The only prescription drugs available that actually benefit MS patients cause terrible side effects, that is, except for one, cannabis. And cannabis allows MS patients to use less prescription drugs while increasing their effectiveness.
250,000 to 350,000 people in the United States have been diagnosed with Multiple Sclerosis by a physician. Tell me again why Medical Cannabis is illegal…
To view more of our Medical Cannabis Testimonies, please visit our youtube channel at www.youtube.com/cannabispatientnet/.