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Tag Archives: Missouri

My history

     I’m not much different than most medical cannabis patients.  Just another criminal statistic in our government’s war on its own people.  You see, that’s what I am in the eyes of our justice system, a criminal.

 “My government considers me a criminal.”

    I used to be a hard working, respected member of society.  In most every way, I resembled the typical Republican opinion of what it meant to be middleclass.  I was married; I had three kids, a mortgage, and a car loan.  I worked with my hands, and I went to church on Sunday.  Then I got sick.

    I have worked with not-for-profits since the 80’s, having founded Victory Storehouse, Inc., a benevolence ministry that strived to meet the needs of our county’s poor.  During that time, I also founded a food pantry association that coordinated the efforts of pantries over a three county area.
    By the early 90’s, I was working for the local electric utility, Ameren, as a certified welder and pipefitter.  It was hard work – heavy work, but it paid very well.  I also worked on the side as a computer consultant. 
    All in all, I was accustomed to working eighty plus hours a week.  It was regular fair to find me stocking shelves at the pantry from two ’til five most mornings after I got off from my pm shift at the power plant.

    I currently live in St. Louis, though that’s not always been my home.  I was born and raised in Herculaneum, Missouri.  The Doe Run Lead Smelting plant, its smoke stack and constant noxious discharge were an ever-present reminder of the toxic chemicals that my friends, family, and of course, myself, were ingesting every hour of every day.  But just the sight of the enormous chimney reveals little of the more ominous impact this industry has had on this community.  The clandestine, twilight plumes from the stack, deliberately planned for moonless nights, or the heavy trucks with loose tarps and gaping cargo beds, scattering their loads to the wind as they rolled through the neighborhood streets – for those of us who grew up in Herculaneum, we were exposed to carcinogenics – basically our whole lives.

    Doe Run Company is the largest integrated lead producer in North America and the largest primary lead producer in the western world.  The company has been producing lead in Herculaneum since 1892. 
    Ira Rennert, its present owner, has the dubious title of being the single largest owner of polluting companies in the country.

    It was there in Herculaneum, while remodeling our home that I was exposed to very high levels of lead, cadmium, and arsenic, byproducts of lead smelting.  Soon after, I became very ill.
    The affects that Doe Run was having on our community attracted national attention in 2002 when local and national television news programs investigated the large number of varied illnesses due to the pollution that the local industry had and continued to create.  My ex-wife and I, along with other residents, were featured on local news programs and on the CBS News Program 20/20. 

    Lead can be ingested many ways; through food contamination or contaminated drinking water, and through inhaling Lead dust into the lungs.  It can also be absorbed through the skin.
    Lead poisoning can cause nervous system and kidney damage, learning disabilities, speech and language problems, behavioral problems, poor muscle coordination, decreased muscle and bone growth, hearing damage, high blood pressure, digestive problems, nerve disorders, cataracts, memory problems, concentration problems, muscle and joint pain, pregnancy complications, damaged sperm production, and cancer.

    Cadmium is extremely toxic even in low concentrations and will bioaccumulate in organisms and ecosystems. Cadmium can cause flu like symptoms, chills, fever, muscle ache, tracheo-bronchitis, pneumonitis, pulmonary edema, cough, dryness and irritation of the nose and throat, headache, dizziness, weakness, chest pain, kidney damage, liver damage, osteomalacia, osteoporosis, joint pain, increased risk of fractures, coma, gout, and cancer.

    Arsenic, a well known poison is known to cause violent stomach pains, tenderness and pressure, retching, vomiting, dryness and tightness in the throat, thirst, hoarseness, difficulty of speech, diarrhea, tenesmus, convulsions, cramps, clammy sweats,  lividity of the extremities, countenance collapsed, delirium, skin cancer, and death.

    Independent testing revealed high concentrations of these byproducts throughout our property and within our home:

    On our refrigerator,  lead, as high as 9,000/parts per million
        – Standard is 40/parts per million indoors

    In my office at same residence, lead, as high as 7,745/parts per million
        – Standard is 40/parts per million indoors

    On the awning over window on the front of the house, lead, as high as 10,500/parts per million
        – Standard is 400/parts per million outdoors

    In the front yard, cadmium, as high as 10-15/parts per million
        – Average is less than 1/parts per million

    We live in a polluted society.  To bring home that fact, all we have to do is look at other species that share our homes.  50% of all dogs and 30% of all cats die of cancer.  In Herculaneum, dogs rarely die of natural causes.

    After an exhaustive line of expensive medical tests at the hands of the best physicians and specialists St. Louis had to offer, my condition was labeled “Fibromyalgia with severe migraines”.  Hardly a suitable description for the agony I suffered daily. 

“Cannabis helped my memories return.”

My illness: The Fibromyalgia

    Fibromyalgia is the catch-all diagnose of the medical community.  It’s what physicians label your illness when they have exhausted all other possibilities. 
    The defining symptoms of Fibromyalgia are chronic, widespread pain and tenderness to light touch.  Other symptoms can include moderate to severe fatigue, needle-like tingling of the skin, muscle aches, prolonged muscle spasms, weakness in the limbs, nerve pain, irritable bowel syndrome, myofascial pain syndrome, sleep disturbances, cognitive dysfunction, impaired concentration, headaches, myoclonic twitches, and hypoglycemia.
    In most instances, this condition seems to be linked to events and/or periods, triggering circumstances in one’s life, that are especially traumatic or stressful. 
    Even when the targeting event is independent and fleeting, subsiding completely, the Fibromyalgia remains.

     Gulf War Syndrome, which gained its ominous notoriety following the Middle East conflict of the early 90’s, was perhaps our first inclination that Fibromyalgia may have an environmental link.  Soon after their tour of duty, a relatively large number of our military and support services personnel developed Chronic Fatigue, loss of muscle control, headaches, dizziness, loss of balance, memory problems, muscle and joint pain, indigestion, skin problems, shortness of breath, and even insulin resistance.  Brain cancer, Amyotrophic lateral Sclerosis (Lou Gehrig’s disease), and Fibromyalgia are recognized by the Defense and Veterans Affairs Departments as potentially connected to service in the Gulf War.
    Probable causes for these illnesses have been linked to exposure to depleted uranium munitions, side-effects from the early 90’s anthrax vaccine, and chemical weapons such as nerve and mustard gas.

    Popular treatments for fibromyalgia include hormones, analgesics, muscle relaxers, and antidepressants.

Hormones, like Cortisol (Hydrocortisone), are used to treat inflammation and to supplement natural Cortisol when its production is too low. It’s also used to treat Rheumatoid Arthritis, allergies, Multiple Sclerosis, and skin conditions.
    Hydrocortisone can cause difficulty sleeping, dizziness, lightheadedness, headache, increased appetite, increased sweating, indigestion, nervousness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, black, tarry stools, changes in menstrual periods, chest pain, eye pain or increased pressure in the eye, fever, chills, or sore throat, joint or bone pain, mood or mental changes (depression), muscle pain or weakness, seizures, severe or persistent nausea or vomiting, stomach pain, bloating, swelling of the feet or legs, and unusual weight gain or loss.

     My doctors would periodically put me on extended doses of Prednisone.  To this day, I really am not sure why.  Yes, I know it’s an anti-inflammatory, but, like so many drugs used to treat chronic illness, there’s just so much collateral damage.
    The side effects of Prednisone are hives, difficulty breathing, swelling of the face, lips, tongue, or throat, vision problems, rapid weight gain, severe depression, unusual thoughts or behavior, seizures, bloody or tarry stools, coughing up blood, Pancreatitis, low potassium, dangerously high blood pressure, insomnia, acne, dry skin, thinning skin, bruising or discoloration, slow healing, increased sweating, headache, dizziness, spinning sensation, nausea, stomach pain, bloating, and changes in body fat. 
    I would gain considerable weight, particularly in my abdomen.  I got a lot of work done – it was like being on speed, but my heart would often feel like it was going to beat out of my chest and I became very irritable and short-tempered.  And, it tore my stomach up.

Analgesics, like Acetaminophen (Tylenol, Ultram), anti-inflammatories (aspirin), ibuprofen (Advil, Motrin) or naproxen sodium (Anaprox, Aleve), are all used to address the milder symptoms of Fibromyalgia. 
    I was on most of them with only very minor pain relief.  However, large doses of these over-the-counter drugs tore my stomach up, as well.  The next course of action would then be for physicians is to recommend over-the-counter or prescription stomach meds in an attempt to counteract the side effects of the first round rather than trying to find a less problematic anti-inflammatory pain reliever since, quite frankly, in the realm of conventional medicine, it doesn’t exist.

    Tylenol, as most everyone on the planet knows, is used to treat everything from minor aches and pains to fever.  It lowers a chemical in the brain that stimulates pain nerves and the heat-regulating center in the brain.
    Side effects can include rash hives, itching difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, dark urine or pale stools, unusual fatigue, and yellowing of the skin or eyes. 
    Most who only occasionally use this medicine will probably never experience the more serious adverse reactions.  But for those of us who suffer from chronic illness, we’re more likely to experience most if not all of them due to the ever increasing dosage required to alleviate the pain and discomfort. I was one of them.  I experienced the “Tylenol headache”, another name for the liver damage that comes with overdosing; not once but a number of times.  It was excruciating beyond words.

    Aspirin, an NSAID (nonsteroidal anti-inflammatory drug), is a willow bark extract. It received its name back in 1899 from Bayer, who holds the registered trademark to this day.  Though its been given a rather benign status of late as a preventative for heart attacks, there are up to 500 deaths attributed to Aspirin every year.
    Side effects for Aspirin are heartburn, nausea, upset stomach, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, black or bloody stools, confusion, diarrhea, dizziness, drowsiness, hearing loss, ringing in the ears, severe or persistent stomach pain, unusual bruising, vomiting, and of course, death.

    Advil, also an NSAID, is yet another mystery to its creators and distributors (doctors, hospitals, drug merchants).  No one actually knows how it works.  What do you think would be the chances of you or I receiving a patent for a medical device, let alone getting it to production, if we didn’t know what made it tick? Kind of strips the Food and Drug Administration (FDA) of all credibility, doesn’t it?
    Possible side effects for Advil are constipation, diarrhea, dizziness, gas, headache, heartburn, nausea, stomach pain or upset, rash, hives, itching, trouble breathing, tightness the chest, swelling of the mouth, face, lips, or tongue, bloody or black, tarry stools, change in the amount of urine produced, chest pain, confusion, dark urine, depression, fainting, fast or irregular heartbeat, fever, chills, or persistent sore throat, mental or mood changes, numbness of an arm or leg, one-sided weakness, red, swollen, blistered, or peeling skin, ringing in the ears, seizures, severe headache or dizziness, severe or persistent stomach pain or nausea, severe vomiting, shortness of breath, stiff neck, sudden or unexplained weight gain, swelling of hands, legs, or feet, unusual bruising or bleeding, unusual joint or muscle pain, unusual tiredness or weakness, vision or speech changes, vomit that looks like coffee grounds, and yellowing of the skin or eyes.  Taking Ibuprofen increases your risk of heart attack and stroke.  It also increases the risk of fatal stomach ulcers and bleeding.  This is not a complete list.

    Aleve, is also an NSAID.  Another mystery drug, its function is largely a mystery to modern (?) science.  Amazing what we are forced to gamble just for relief of “minor aches and pains”.
    Side effects to Aleve are constipation, diarrhea dizziness, drowsiness, gas, headache, heartburn, nausea, stomach upset, stuffy nose, rash, hives itching, trouble breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bloody or black, tarry stools, change in the amount of urine produced, chest pain, confusion, dark urine, depression, fainting, fast or irregular heartbeat, fever, chills, or persistent sore throat, mental or mood changes, numbness of an arm or leg, one-sided weakness, red, swollen, blistered, or peeling skin, ringing in the ears, seizures, severe headache or dizziness, severe or persistent stomach pain or nausea, severe vomiting, shortness of breath, sudden or unexplained weight gain, swelling of hands, legs, or feet, unusual bruising or bleeding, unusual joint or muscle pain, unusual tiredness or weakness, vision or speech changes, vomit that looks like coffee grounds, and yellowing of the skin or eyes.  Like Ibuprofen, Naproxen increases your risk of heart attack and stroke and your risk of fatal stomach ulcers and bleeding.  This is not a complete list.

Muscle relaxers, like Flexeril and Zanaflex are commonly used to ease the pain of Fibromyalgia.
    Curiously, physicians and scientists don’t know exactly how Flexeril works, either.   All they know for sure is that it relieves pain and muscle spasms.  Like so many drugs that are approved by the FDA, little details like “not knowing how it works”, are apparently not considered when tabulated with yet another profitable revenue stream.  Just who does the FDA work for, anyway? 
   
    Flexeril is what is called a tricyclic muscle relaxant.  It is marketed to reduce muscle spasms.
    Side effects of  Flexeril are constipation, diarrhea, dizziness, drowsiness, dry mouth, fatigue, nausea, nervousness, stomach pain or upset, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, chest pain, confusion, fainting, fast or irregular heartbeat, mental or mood changes, numbness of an arm or a leg, one-sided weakness, seizures, sudden severe stomach pain, severe dizziness or vomiting, speech or vision problems, trouble urinating, and yellowing of the skin or eyes.

    Zanaflex  is a skeletal muscle relaxant that is used to treat muscle spasms. 
    Side effects include constipation, dizziness, drowsiness, dry mouth, flushing, tiredness, weakness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, change in emotions, mood, or behavior, hallucinations, increased muscle spasms, muscle weakness, slow heartbeat, trouble urinating or lack of bladder control, urinary tract infection, and yellowing of the skin eyes.

Antidepressants, like Amitriptyline, Sertraline (Zoloft), paroxetine (Paxil), and Fluoxetine (Prozac).  I ran the gamut on these guys. 

    Amitriptyline is a very old, well known, and popularly prescribed antidepressant.  It is thought to increase the activity of certain chemicals in the brain like Norepinephrine and Serotonin, but no one knows for certain (who’d have guessed). 
    It did little if anything for me. 
    Side effects of Amitriptyline are blurred vision, change in sexual desire or ability, constipation, diarrhea, dizziness, drowsiness, dry mouth, headache, loss of appetite, nausea, tiredness, trouble sleeping, weakness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, chest pain, confusion, dark urine, delusions, difficulty speaking or swallowing, fainting, fast or irregular heartbeat, fever, chills, or sore throat, hallucinations, new or worsening agitation, anxiety, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still; numbness or tingling in an arm or leg, one-sided weakness, seizures, severe or persistent dizziness or headache, severe or persistent trouble sleeping, slurred speech, suicidal thoughts or actions, tremor, trouble urinating, uncontrolled muscle movements, unusual bleeding or bruising, unusual or severe mental or mood changes, vision problems, and yellowing of the skin or eyes.

    Zoloft and Paxil caused sexual side-effects that I would really prefer to not go into.  Beyond that, they did little for me to curb the Fibromyalgia symptoms.

    Zoloft is used to treat depression, obsessive-compulsive disorder (OCD), Post Traumatic Stress Disorder (PTSD), Premenstrual Dysphoric Disorder (PMDD), and Social Anxiety Disorder, to name a few.
    Side effects can include anxiety, constipation, decreased sexual desire or ability, diarrhea, dizziness, drowsiness, dry mouth, increased sweating, loss of appetitive, nausea, nervousness, stomach upset, tiredness, trouble sleeping, vomiting, weight loss, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bizarre behavior, black or bloody stools, chest pain, decreased bladder control, exaggerated reflexes, fast or irregular heartbeat, fever, hallucinations, loss of coordination, new or worsening agitation, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still, persistent or severe ringing in the ears, persistent, painful erection, red swollen, blistered or peeling skin, seizures, severe or persistent anxiety, trouble sleeping, stomach pain, suicidal thoughts or attempts, tremor, unusual bruising or bleeding, unusual or severe mental or mood changes, vision changes, and worsening of depression.

    Paxil is also used for treating depression, obsessive-compulsive disorder( OCD), Post Traumatic Stress Disorder (PTSD), and anxiety disorder and social anxiety disorder.
    Side effects of using Paxil include anxiety, blurred vision, constipation, decreased sexual desire or ability, diarrhea, dizziness, drowsiness, dry mouth, gas, increased sweating, increased urination, loss of appetite, nausea, nervousness, stomach upset, trouble concentrating, trouble sleeping, unusual skin sensations, weakness, yawning, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bizarre behavior, black or bloody stools, chest pain, exaggerated reflexes, fast or irregular heartbeat, fever, chills, or sore throat, hallucinations, loss of coordination new or worsening agitation, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still, persistent or severe ringing in the ears, persistent, painful erection, red, swollen, blistered, or peeling skin, seizures, severe or persistent anxiety or trouble sleeping, significant weight loss, stomach pain, suicidal thoughts or attempts, tremor, unusual bruising or bleeding, unusual or severe mental or mood changes, vision changes, and worsening of depression.

    Over 22.2 million prescriptions for Fluoxetine, the generic of Prozac, were filled in the United States in 2007.  It’s been approved by the FDA for treating major depression, obsessive compulsive disorder, bulimia nervosa, and panic disorder.
    Wow, Prozac.  That was what I took the longest.  It seemed to help, but it also took away something; my confidence, my sanity, maybe a piece of my soul.  I was still paying a price for taking Prozac long after I stopped taking it.  Read through the side-effects.  I can vouch for most of them.
    Side effects for Prozac include:  anxiety decreased sexual desire or ability, diarrhea, dizziness drowsiness, dry mouth, increased sweating, loss of appetite, nausea, nervousness, stomach upset, trouble sleeping, weakness, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face lips, or tongue, bizarre behavior, black or bloody stools chest pain, confusion, exaggerated reflexes, excessive sweating fast or irregular heartbeat, fever, chills, or sore throat, hallucinations, increased urination, joint or wrist aches or pain, loss of coordination, new or worsening agitation, panic attacks, aggressiveness, impulsiveness, irritability, hostility, exaggerated feeling of well-being, restlessness, or inability to sit still, persistent or severe ringing in the ears, persistent, painful erection, red, swollen, blistered, or peeling skin, seizures, severe or persistent anxiety, trouble sleeping, significant weight  loss, stomach pain, suicidal thoughts or attempts, tremor, unusual bruising or bleeding, unusual hoarseness, unusual or severe mental or mood changes, unusual swelling, vision changes, and worsening of depression. 
    Of course, as it is with most of the over-the-counter and prescription meds listed here, if you’re on other prescription medications, drug interactions open up a whole new list of side effects.

     More recently, anti-seizure medications, like Neurontin and Lyrica have been used to treat the pain of Fibromyalgia.

    Neurontin was originally developed to treat epilepsy.  It’s widely used to treat neuropathic pain and frequent migraines. 
    Side-effects include dizziness, drowsiness, peripheral edema (swelling of extremities), mild-to-moderate mood swings, hostility, concentration problems, hyperactivity, and hepatotoxicity (chemically caused liver damage).   

    Lyrica, an anticonvulsant that is also used for neuropathic pain and seizures, has been popularly advertised to treat the pain of Fibromyalgia. 
    Side-effects include hallucinations, vivid dreams, weakness, fever, low blood pressure, dehydration, severe drowsiness, fluid retention in the legs, feet, arms, arms, or hands, dizziness, disease of the nerves, blurred vision, sensation of spinning or whirling, weight gain, infection, dry mouth, infrequent bowel movements, chronic pain, head pain, double vision, Pink Eye, middle ear infection, ringing in the ears, hemorrhage of blood under the skin, inflammation of lining of the stomach and intestines, hives, skin blisters, muscle spasms, difficulty with voluntary movement, water retention, puffy face, difficulty speaking, wheezing, trouble breathing, chest pain, difficulty with bladder control, numbness and tingling, low blood sugar, decreased blood platelets, confusion, suicidal thoughts, problems with eyesight, involuntary eye movement, sinus irritation, and congestion, Bronchitis, erectile dysfunction, twitching, fingernail and/or toenail disease, joint pain, backache, abnormal increase in muscle tone, muscle weakness, muscle pain, leg cramps, inability to concentrate, memory loss, stupor, fever, low energy, quivering, twitching, difficulty walking, increased hunger, nausea, gas, diarrhea, frequent urination, stomach cramps, abdominal swelling, nervousness, anxiousness, loss of reality or identity, and sexual problems.

The headaches

    Many weeks, I experienced two to three moderate to severe migraines a week.  Each migraine was like a mini seizure, with a little more of my short and long term memory disappearing with each episode.
    Pharmaceuticals did little to control the headaches.  Consequently, my migraine specialist regularly injected me with experimental medications, often with horrific results.      

    A migraine is a neurological syndrome that can exhibit altered bodily experiences, painful headaches, nausea, vomiting, heightened, often painful sensitivity to smells, bright lights and noise, sometimes preceded by an aura.
    For most all of us who suffer or have suffered from migraines, self-treatment begins with over-the-counter painkillers like Tylenol or Advil and nausea medicine like Tums, Gaviscon, and Maalox.
    We also quickly learned to avoid things that can trigger them, like certain foods, bright lights, loud noises, certain odors, physical and emotional stress, changes in sleep patterns, smoking or exposure to smoke (including but not reserved to cigarettes), skipping meals, and alcohol.  Other things specific to the individual can set off a migraine.  Often they occur seemingly without reason.  
    Unfortunately for me and so many like me, we’re forced to seek the help of physicians and specialists who immediately begin a procession of pharmaceuticals.

    Common prescriptions that are doled out for migraines are Triptans like Imitrex, or mix and match cocktails – Fioricet and Ergot Alkaloids like Cafergot.

    Imitrex works by narrowing the blood vessels in the brain.  When I was first diagnosed, it was only available in an injection.  Soon after, it was made available in a pill, though the injection had a much more immediate effect.
    Side effects include burning, dizziness, drowsiness, feeling of heaviness or pressure, muscle aches, numbness or tingling of the skin, sick feeling, tingling, tiredness, warm/hot sensation, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, bloody diarrhea, chest pain, confusion, fainting, fast or irregular heartbeat, fever, hallucinations, hearing problems, numbness or tingling of an arm or leg, one-sided weakness, pain, tightness, or pressure in the jaw, neck, or chest, seizures, severe headache, dizziness, vomiting, severe or prolonged flushing, severe stomach pain, shortness of breath, speech changes, very cold or blue fingers or toes, vision changes or loss of vision, and wheezing.

    Fioricet comes with or without codeine.  It’s a combination of Acetaminophen (for pain and fever), butalbital (a muscle relaxer), and caffeine (relaxes the contraction of blood vessels).  It’s used to treat tension headaches that are caused by muscle contractions.
    Side effects include fast, pounding, or uneven heartbeat, feeling light-headed or short of breath, nausea, stomach pain, low fever, loss of appetite, dark urine, clay-colored stools, jaundice, easy bruising or bleeding, unusual weakness, fever, chills, body aches, flu symptoms, drowsiness, dizziness, confusion or lightheadedness, dry mouth, loss of appetite, feeling anxious or jittery, drunk feeling, and headache.

    Cafergot is a combination of Caffeine and Ergotamine, both vascular constrictors.  It’s used to treat migraines by constricting blood vessels in the lining of the brain.
    Side effects to Cafergot are nausea, rash, hives itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, blue color of the fingers or toes, chest pain or tightness, cold or pale fingers or toes, diarrhea, dizziness, hallucinations, headache, irregular heartbeat, leg cramps or weakness, mental or mood changes, muscle pain, numbness or tingling of the hands, feet, or skin, ringing in the ears, seizure, severe or persistent nausea or vomiting, shortness of breath, swelling, temporary fast or slow heartbeat, vomiting, and weak pulse. 
    My migraine specialist had me on something similar that he had concocted.  He called it Pink-Ergot/Caff/Butal/APAP.  Ergot for Ergotamine (like Cafergot), is derived from ergot fungus, the same stuff that’s used to make LSD.  Caff is for Caffeine (also like Cafergot).  Butal is for Butalbital, a barbiturate.  APAP is for Paracetamol or Acetaminophen, a widely used analgesic, (the same stuff as Tylenol or Ultram).
    It actually did help stem off a migraine if I caught it soon enough.  Of course, with it containing four harmful drugs, most that I have already addressed here, you may have already guessed that the side-effects were longer than your arm and leg combined.

    Methylphenidate is a drug that most might recall was given to children with Attention Deficit Disorder (ADD).  It’s a stimulant that seems to have the reverse effect on someone who is legitimately hyperactive.  It was prescribed to me to counteract the one most prominent symptom of Fibromyalgia, “brain fog”. 
    Brain fog or fibrofog is a cognitive dysfunction which may be characterized by impaired concentration, problems with short and long-term memory, short-term memory consolidation, impaired speed of performance, inability to multi-task, cognitive overload, diminished attention span, anxiety, and depressive symptoms.
    Side effects of Methylphenidate are dizziness, drowsiness, headache, loss of appetite, nausea, nervousness, stomach pain, trouble sleeping, rash, hives, itching, difficulty breathing, tightness in the chest, swelling of the mouth, face, lips, or tongue, joint pain, purple or brownish red spots on the skin, behavior changes (aggression, hostility), blurred vision or other vision problems, chest pain, confusion, dark urine, fainting, fast or irregular heartbeat, fever, chills, or sore throat, hallucinations, agitation, anxiety, depression, irritability, persistent crying, unusual sadness, seizures, severe or persistent dizziness or headache, suicidal thoughts or attempts, uncontrolled speech or muscle movements, and yellowing of the eyes or skin.  

    My stomach was constantly upset; from the illness and the continually changing regiments of prescription drugs.  The pain, weakness, and confusion made it impossible for me to work.  I had to leave my certified welder and pipefitter position with Ameren, our local electric utility, my computer consulting business, and close our much needed food pantry.  Later, we lost our cars, our home, and eventually our marriage. 

    In 1997, I went on full disability.  It was also that year that I discovered information regarding cannabis and its treatment for Fibromyalgia. 
    What followed was anything short of miraculous.  After just a few weeks of dosing with cannabis, my short and long term memory began to return – a bonus I didn’t expect.  The pain from the Fibromyalgia lessened substantially.  After a few months, my migraines became largely non-existent.

    According to Wikipedia.org, Fibromyalgia patients frequently self -report using cannabis therapeutically to treat symptoms of the disorder.  Writing in the July 2006 issue of the journal Current Medical Research and Opinion, investigators at Germany’s University of Heidelberg evaluated the analgesic effects of oral THC (tetrahydrocannabinol) in nine patients with fibromyalgia over a 3-month period. Subjects in the trial were administered daily doses of 2.5 to 15 mg of THC, but received no other pain medication during the trial. Among those participants who completed the trial, all reported a significant reduction in daily recorded pain and electronically induced pain.  Previous clinical and preclinical trials have shown that both naturally occurring and endogenous cannabinoids hold analgesic qualities, particularly in the treatment of cancer pain and neuropathic pain, both of which are poorly treated by conventional opioids. As a result, some experts have suggested that cannabinoid agonists would be applicable for the treatment of chronic pain conditions unresponsive to opioid analgesics such as Fibromyalgia, and they propose that the disorder may be associated with an underlying clinical deficiency of the endocannabinoid system.

    I have now been a medical cannabis patient for over ten years.  My memory has continued to sharpen with the years.  The only difficulties that I have encountered with my health have occurred when my medicine was not available.  A few months ago, while rationing my meds, I had my first full blown seizure.
    As far as side effects from the use of Cannabis, I have noticed an occasional drop in cognitive function, (i.e. short-term memory loss and impaired concentration), but these are also symptoms of Fibromyalgia and also seem to coincide with stressful events and changes in barometric pressure (also characteristic of Fibromyalgia).
    Interestingly, despite the government’s classification as a “hallucinogen”, I have NEVER suffered hallucinations while using Cannabis.  You may have already noticed, many of the pharmaceuticals described here list hallucinations as a side effect.

My work 

Up until 2006, my involvement in the medical cannabis movement was limited to writing on the web and contacts with state Representatives and Senators.
In April of 2006 I left Charleston, South Carolina bound for San Francisco, California with a group called Journey for Justice 7.  I drove a support truck and was the on-road coordinator for the project, which featured three bicyclers.  The lead biker, Ken Locke, who founded Journey 7, is also a medical cannabis patient.
Our purpose was to educate people across the country about the benefits of cannabis for the treatment of the chronically ill.  That was also when I began collecting the testimonies of medical cannabis patients, their family members, and physicians on video.  I have continued to collect testimonies, making it the primary focus for my activism.

    The work I am doing has come to be called Cannabis Patient Network.  Up until the first of August, 2008, I was the only one working on this project.  During my most recent visit to North Carolina, I enlisted the assistance of videographer Ervin Dargan, my good friend and fellow activist.
Currently, we have over 70 videos of cannabis patients on our youtube channel, CannabisPatientNet, with another 7 or so still in edit.  We should well exceed 100 interviews by the first of the year. 
    I have interviewed patients with Multiple Sclerosis, Muscular Dystrophy, Fibromyalgia, Epilepsy, chronic pain, migraines, breast cancer, lung cancer, testicular cancer, Acoustic Neuroma,  skin cancer, brain aneurism,  stuttering, PTSD, Crohns, Lupus,  chronic depression and anxiety, other mental issues, Neuropathy of the feet, Neurological pain due to paralysis, and many more that I don’t venture to try to spell or pronounce.
    My goal is to have tens of thousands of Testimonies, from every District of every state in the Union.

    We provide science and medical research to back up the testimonies of the chronically ill of whom we interview.  In addition, we extensively research the illnesses and injuries, the pharmaceuticals that the patients have taken, their side effects, and results of their regular dosing with cannabis.

     I have the curious ability to gain the trust of otherwise reluctant chronically ill individuals.  Perhaps it is because I am also a patient and have regularly told my story publicly.  For whatever reason, this work has grown exponentially, building on the interviews that we have already done.  That gives us validity, creating confidence in prospective patients and their communities. 

    We’re constantly looking for more of the chronically ill who would be willing to sit for an interview.  I’m convinced that most people don’t realize the power they have in their personal testimony.

 “We have something that relieves suffering.”

 What works

    The vast majority of the chronically ill don’t know that cannabis is real medicine and that this God given plant could give them a better quality of life.  That’s where we, the cannabis patient, come in.  Its so simple that most activists can’t fathom it. 
    All we have to do is tell the truth.  Our own, personal story.  That’s all.  The world wants to hear it.  They know that the drug companies are killing us.  What they don’t know is that cannabis could very well save their lives, or at least, make them more tolerable. 

     The truth is in the telling.  We are real people.  We are a portion of the middleclass that affects 100% of America, because every family in America has at least one member who is chronically ill. 

     Join with me.  Lift up the hands that hang down. We’ll save lives and change law.

 Mark D. Pedersen
www.cannabispatient.net
cannabispatientnet@swbell.net


    I met Mandy at Joplin’s Cannabis Revival 2007. A resident of Joplin, Mandy has found that medicating with Cannabis allows her to work in spite of the fact that she has been battling Multiple Sclerosis for several years now.

Mandy has Multiple Sclerosis

To view all our Medical Cannabis Testimonies, please visit my youtube channel CannabisPatientNet, and to view our legislative reform, go to http://www.markpedersen.com and http://www.gstlnorml.org.


    Mark lives in the City of St. Louis. He had been living a relatively healthy life up until about a year ago. A seemingly innocent sinus infection turned life-threatening, culminating in brain surgery. His life was turned upside down.

Mark suffers from seizures

    Mark soon found himself on many prescription drugs, disabled, and prone to seizures. Mark discovered that cannabis eased his anxiety and lessened his seizures.

    To view all our Medical Cannabis Testimonies, please visit my youtube channel CannabisPatientNet, and to view our legislative reform, go to http://www.markpedersen.com and http://www.gstlnorml.org.

    David, a long-time resident of St. Louis, displays all the carefree hippy attributes of his youth. But David isn’t well. He hasn’t been well for a very long time. He suffers from chronic depression. He also suffers from the residual affects of Hepatitis C.
    Depression runs in his family. His father committed suicide in 2000.  David has times when he cannot leave his home. It’s during those times that he finds cannabis to be quite affective in treating his anxiety. With it, he is able to face the world.

David suffers from depression and anxiety.

     David has strived to improve himself, returning to college and receiving a BA in Psychology. Unfortunately, a cannabis bust brought his education to a halt. Finding himself without the only thing that freed him from his home-bound incarceration, he was forced to slip back into the shackles of mental illness and pharmaceutical stupor. So, for the last five years, David’s life has been on hold. That’s how long he has been on probation. The penalty for being caught in the possession of the only medicine that affectively treats his illness is to be denied that very medicine for five very crucial years of his life. It’s not enough that he suffers alone with a debilitating illness, but further, he must suffer knowing that it is Missouri law and nothing else that forbids him from having a life; that denies him the very rites our founding fathers pledged their sacred honor to instill. The words “life, liberty, and the pursuit of happiness” are only words to the forgotten America which is the chronically ill.

    This first ever Patient Protection Day 2008 was a statewide lobbying event involving medical cannabis patients from Kansas City, Joplin, Columbia, and St. Louis.   

    Dan Viets, representing MO Norml, orchestrated this event and functioned as our Jefferson City Liaison.  An attorney and 30 year veteran in the struggle against Cannabis Prohibition, Dan has been at the forefront of every legislative attempt here in Missouri.  
  

 Dan’s wife is a cancer survivor.

 

    During this day-long event, chronically ill Missourians and their advocates met with Missouri Speaker of the House, Rod Jetton.  Jetton, who blocked their Cannabis Compassion Bill in 2007, was making every effort to block it again for 2008.
    Though Jetton recanted his position while faced with a number of patients in his office, he later killed HB1830 by appointing it to a do-nothing committee too late in the session for it to go anywhere.
    Fortunately for Missouri’s chronically ill, Rod Jetton will not be returning to Missouri’s House in 2009.

 

    Patients presented their testimonies beneath the Rotunda of Missouri’s capital building, as their voices carried up through the adjoining floors above them and the corridors that spidered off from the domed enclosure.
    The stage and sound system were generously provided by the University of Missouri, Columbia.

    Jacqueline Patterson, formerly of Kansas City, conceived this, the first Missouri Patient Protection Day, during a phone conversation she had with Mark Pedersen two weeks prior to the event. She flew in from California to be a part.
    Jacqueline had to move to California or risked losing custody of her children.  Afflicted with Cerebral Palsy and a moderate stutter, she doses regularly with Cannabis to ease her symptoms. 
    Family Services of Missouri does not condone the use of cannabis to treat Cerebral Palsy or any of the other many chronic illnesses that have proven receptive to cannabis therapy.  They continue to adhere to the 70 year old propaganda that blindly condemns cannabis to being a harmful drug and a danger to our nation’s young people.  Apparently, Family Services does not consider “family” to be as important as politics.

 

Jacqueline has Cerebral Palsy

 

    Jacqueline was featured in Showtime’s documentary “In Pot We Trust”.

 

    Aimee has been battling Autoimmune diseases most of her life; Lupus and Crohn’s, to name only two.  In 28 years, she has suffered more than most of us have ever dreamed of. Cannabis has brought her unfailing relief from pain and other symptoms during her many struggles.

 

Aimee battles Autoimmune Disease

 

    Mark Pedersen of St. Louis has been a Cannabis patient for over ten years. He uses Cannabis to treat Fibromyalgia and severe migraines. For the last several years, he has been an advocate for the chronically ill and a proponent for legislative change in Missouri and nationwide.

 

Mark suffers from Fibromyalgia and severe migraines

 

    Since 2006, Mark has been collecting video testimonies from Cannabis patients, their families, and physicians, from across the country, but most specifically in Missouri and North Carolina, where he has been most involved in legislation to benefit the chronically ill.

 

    As the chronically ill step up to take an active roll in ending cannabis prohibition, America has finally been given a face to this terrible injustice.  The hypocrisy that has dominated this political deboggle is dimming amidst the ever growing number of cannabis patients coming forward to tout the benefits of this age old holistic treatment.  

  

 To view all our Medical Cannabis Testimonies, please visit my youtube channel CannabisPatientNet, and to view our legislative reform, go to www.markpedersen.com, www.asawnc.org, and www.gstlnorml.org.

Rod’s house burned down in January 2007.

Rod suffers from Epilepsy

While his house was still burning, the fire department there in St. Charles, Missouri chose to break down the door into his grow room, even though that part of his house wasn’t involved in the fire. They also chose to pry open the locked drawers of a steel desk looking for cash rather than fight the fire that was consuming the rest of his house. Rod’s lacerations and burns had to wait while he was handcuffed in the street in front of his neighbors and children and hauled off to jail, while his home still burned.
Though Rod used cannabis from his personal garden for his personal use to treat his Epilepsy, he was charged with manufacture, distribution, and other felonies just like a street drug dealer. To add insult to injury, the St. Charles Fire Department distributed a video of their heroic efforts, rummaging through Rod’s home looking for cash and contraband, among other fire departments around St. Louis and St. Charles County.

His pharmaceutical use is reduced to a third with Cannabis

To view all our Medical Cannabis Testimonies, please visit my youtube channel CannabisPatientNet, and to view our legislative reform, go to http://www.markpedersen.com and http://www.gstlnorml.org

     This video was originally taken at the 2007 Missouri State Norml Conference in Columbia, Missouri. Mr. McVay was one of the speakers.
    There were 300 views on the original youtube video at the time of the update. Better quality equipment and improvements in my feable skill level have allowed for a far better quality audio and video presentation.

Doug McVay is a cancer survivor.

 

    Doug, an activist of “Drug War Facts” fame, is a cancer survivor. He praises Cannabis for improving his chances for recovery by replacing opiates for pain and easing the affects of chemotherapy.

Cannabis maintained his weight during chemo

 
    To view all of our Medical Cannabis Patient   Testimonies, please visit my youtube channel www.youtube.com/CannabisPatientNet , and to view our legislative reform, go to www.markpedersen.com  and www.gstlnorml.org.